What do purple toes mean?
Hope4Harper supporters painted their toes purple during November to help spread awareness of Epilepsy. Below is Harper’s Facebook Gallery of toe painters and who they painted them for.
The Facts about seizures: What they look like and what you should do
Post by Hope4Harper CDKL5.
Let’s commit to increasing awareness ALL YEAR LONG and change the lives for those who need it!
Explore more info graphics like this one on the web’s largest information design Read more [...]
The numbers are clear
The last two weeks for Harper on Industrial Hemp Oil have not been as good as the first two, but there is still improvement from prior to our use of the product.
Week 7: 39 seizuresWeek 8: 45 Seizures
Still less than 64 seizures from the week prior to our start but we are sad it’s not as good as the first 6 weeks on high-CBD hemp oil. Since there is no harm in giving this natural product to Harper, from here we will continue to track progress and see how Read more [...]
A post by a guest blogger means a brain break for Penny and relevant info for you!
How to Apply for Disability Benefits for a Child with CDKL5
CDKL5, or X-linked infantile spasm syndrome, is a form of epilepsy that qualifies medically for Social Security Disability benefits. As a congenital genetic disorder that is either caused by a mutation in the CDKL5 gene or a deletion of that gene, X-linked infantile spasm syndrome causes intellectual disability in addition to seizures and can qualify Read more [...]