Harper CDKL5 Awareness Story June 27

“Harper likes toys with lights, instrumental music, shiny beads and the wind in her hair. Harper has taught us about patience, communication and love! Patience we thought we had but realized we didn’t. Communication we thought we knew but now know it’s more than just words. Love we thought we felt and understood but now know it’s an unexplainable experience you hope everyone has. All of which are encompassed in TIME! Something more valuable than anything you could purchase or find. For without time you cannot learn to be patient, understand communication, or feel love.”

Thank you to the CDKL5 Canada and CDKL5 UK organizations for featuring Harper during CDKL5 Awareness Month.