by thehowardhouse | Jun 21, 2016 | Harper's Updates
Summers with CDKL5 As we dive into summer I want to share with everyone a few things we learned over the past 6 years in our world of special needs…. “Ah, summer, what power you have to make us suffer and like it.” ~Russell Baker REMEMBER SUNSCREEN! Some...
by hope4harper | Apr 7, 2016 | Harper's Updates, Seizure Research Project
“If you lose something, it’s OK. And I get to see Harper again, but not for a long time… Just like in the book. Right?” -Lily Howard The reality of a life-threatening disorder It’s important to know the task of death requires great strength and that you...
by hope4harper | Jan 9, 2016 | Harper's Updates
“There is so much that I don’t understand. But I know you’re dancing with the angels.” -Monk & Neagle Harper Elle Howard April 12, 2010 – January 8, 2016 I never imagined Harper’s job on earth could be done… We got Harper...
by hope4harper | Dec 29, 2015 | Harper's Updates
Hope4Harper reviews 2015 month-by-month January and February were pretty uneventful as Harper and I happily recovered out of the hospital and at home from our Christmas 2014 car wreck and flu. We were well enough by the end of the month to go ice skating and...
by thehowardhouse | Nov 3, 2014 | Harper's Hemp Timeline, Harper's Updates
7 Months Seizure Free in Perspective We enjoyed 7 months of seizure freedom: Harper’s smiles, attitude, increased vocalization, improved head control, and interaction with the family. What a blessing, a joy, a complete experience of “normal” despite...