Hope4Harper 2016 Year in Review

Posted Friday December 30, 2016 by thehowardhouse

Hope4Harper 2016 Year in Review This year is difficult to recap because...

Hope4Harper 2016 Year in Review This year is difficult to recap because it has been difficult to live through.   The only thing you sometimes have control over is perspective....

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Hope4Harper 2016 Year in Review

Month-by-Month: Hope4Harper CDKL5 2015 Year in Review

Posted Tuesday December 29, 2015 by Hope4Harper

  Hope4Harper reviews 2015 month-by-month January and February were pretty uneventful as...

  Hope4Harper reviews 2015 month-by-month January and February were pretty uneventful as Harper and I happily recovered out of the hospital and at home from our Christmas 2014 car wreck...

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Month-by-Month: Hope4Harper CDKL5 2015 Year in Review

CDKL5 Hope: Experiencing a Virtual Seizure and more from AES 2015

Posted Saturday December 12, 2015 by Hope4Harper

Speak until somebody listens. And don’t stop there! The annual meeting of...

Speak until somebody listens. And don’t stop there! The annual meeting of the American Epilepsy Society was a success!  AES 2015 was a time of reconnecting face-to-face with several individuals,...

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CDKL5 Hope: Experiencing a Virtual Seizure and more from AES 2015

CDKL5 disorder goes national at National American Miss

Posted Wednesday August 05, 2015 by thehowardhouse

An open call invitation A while back, a letter came in the...

An open call invitation A while back, a letter came in the mail from National American Miss Pageant inviting my girls to Open Call. It NEVER crossed my mind this...

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