by thehowardhouse | Feb 21, 2014 | Harper's Hemp, Harper's Updates
Harper: 1, Pseudomonas: 0 The rare germ that landed Harper in the hospital earlier this week was called pseudomonas….a mean little bug for someone like Harper. After having to research what could kill it, Harper was given clindamycin through IV and it worked to...
by thehowardhouse | Sep 20, 2013 | Harper's Updates
Harper’s spirit is strong but her body is fragile! It amazes me how she can so quickly go from good to bad, as I am sure it is with most children battling illness. Last Tuesday, September 10, 2013 we found ourselves unexpectedly hospitalized for five Days...
by thehowardhouse | Sep 14, 2017 | CDKL5 Family
Medical Kidnapping in our CDKL5 Family It took over a year and a half to obtain the Child Protective Services full investigation report. A report that declared no findings of neglect in our home. Thank you to the CPS case manager that pulled my husband...
by thehowardhouse | Jun 30, 2016 | Harper's Updates
We saw no better way to move CDKL5 research forward Hope4Harper spent the last two weeks openly sharing our experiences with media at the World Cannabis Conference in New York City and with families at the CDKL5 Scientific and Family Conference . My hope was that...
by thehowardhouse | Jun 21, 2016 | Harper's Updates
Summers with CDKL5 As we dive into summer I want to share with everyone a few things we learned over the past 6 years in our world of special needs…. “Ah, summer, what power you have to make us suffer and like it.” ~Russell Baker REMEMBER SUNSCREEN! Some...
