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Hope4Harper Lily speaking Engagement

Press Releases & Media that feature or mention Hope4Harper or Seizures


Rare Diseases: There is Still Hope (Podcast featuring Penny Howard, Plaid for Women Radio June 1, 2017)

CEOs say upcoming Pennsylvania pot industry will be complicated (WAJC TV Pennsylvania May 24, 2017)


5-year-old Harper Dies from Rare Disease, Fight for Cure Lives On (video above; CW33 News Dallas January, 2016)

Mexico allows 11-year-old with rare degenerative disease to use cannabis oil (10news.com KGTV January 2016)

Hope for Harper: How a Little Girl with CDKL5 Epilepsy Helped Bring Medical Marijuana to Latin America (Huffington Post January 2016)

California-based Medical Marijuana eyes Mexico as next big market (Reuters.com February, 2016)

Family of 5-year-old who died of rare genetic condition donates organs for scientific research (FoxNews.com February, 2016)

Harper Howard: How a Little Girl is Propelling Scientific Research on CBD (CannaEffect.org April 2016)

Harper Howard’s Legacy, coverage on Fox 5, Part I (video above; YouTube April, 2016)

Harper Howard’s Legacy, coverage on Fox 5, Part II (YouTube April 2016)

Mom’s mission after daughter’s death (video above, Fox News HealthTalk August, 2016)


Harper’s legacy: Family donates 5-year-old’s brain to to science after death from rare condition (Fox News August 2016)


Medical pot expo focuses on innovation (San Diego Union Tribune August, 2016)

Months after 5-year-old’s death, her parents continue fight against her rare genetic disorder (Dallas Morning News September 2016)


Families Tied Together by Rare Disease Meet for the First Time (CW33 Dallas October 2016)

After years of waiting, families of children diagnosed with rare genetic disorder meet for the first time (video above; Dallas Morning News October 2016)



Brazil becomes biggest customer for local hemp oil company (10news.com KGTV November 2015)

Hemp Help: North Texas Family Helps Brazil with Hemp Laws (CW33 News Dallas May 2015)


ILEGAL (Documentary Movie) tells the story of Katiele, a Brazilian who struggles to treat the epilepsy of her 5-year-old daughter with CBD, a substance derived from marijuana and banned in the country. (YouTube March 2014)

Hope4Harper: Hemp Oil Helps 4-Year-Old With Rare Disorder (video above; CW33 News Dallas Gazette September, 2014)



Run4Hope Raises $9000 for Seizure Research (Star Local News Coppell Gazette September, 2013)

Carrollton family continues efforts to help 3-year-old daughter with rare condition (dallasnews.com September, 2013)

2ND ANNUAL HEMP MEDS PX RUN 4 HOPE Press Release (August, 2013)

Medical Marijuana Inc.’s HempMeds PX Top Sponsor of Hope4Harper’s “Run4Hope” (Marketwatch.com August, 2013)



Adaptivemall.com Features Harper’s Story: Living with CDKL5 (Dec. 2012)

Hope 4 Harper Radio Ad “Millions Suffer from Epilepsy” (Nov 7, 2012)

Hope 4 Harper Radio Ad “Lily Talks About Harper”  (Nov 7, 2012)

Hope 4 Harper Radio Ad “Lily asks for No More Seizures” (Nov 7, 2012)

Hope4Harper event draws crowd, support (Sept 11, 2012)

CDKL5 Disorder Causes Two Year Old Harper To Have Up To 20 Seizures Per Day (July 30, 2012)

Rare Genetic Disorder Can’t Take Away Carrollton Couple’s Hope For Harper (Oct 11, 2011)

Mother’s Culture Club plans 5k Turkey Trot – Race to benefit Harper Elle Howard (Oct 4, 2011)



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