To Find a Way to Stop Seizures in CDKL5 Affected Children and Many Others with Epilepsy

This CDKL5 research project is an amazing blessing and an opportunity to work with renowned Epileptologist, Dr. Frances Jensen, 2012 President of American Epilepsy Society and current Department Chair of Neurology at the University of Pennsylvania.  Our efforts are to fund research with her laboratory as they diligently work to help find a way to stop seizures in CDKL5 affected children.   The outcome of this has the potential to help more than just Harper and children with CDKL5 but all those who suffer with seizures regardless of the cause.


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PO Box 116952
Carrollton, TX 75011

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MORE ABOUT Dr Frances Jensen, MD

  • Director of Epilepsy Research,
  • Director of Translational Neuroscience,
  • Children’s Hospital Boston Professor of Neurology,
  • Harvard Medical School

Dr. Jensen currently is a Professor of Neurology and is Chair of the Department of Neurology at the University of Pennsylvania. She is a graduate of Cornell Medical College and did her neurology residency training at the Harvard Longwood Neurology Residency Program. Her research focuses on mechanisms of injury in the developing brain, with specific emphasis on age specific therapies for clinical trials development. She received a 2007 Director’’s Pioneer Award from the NIH to explore the interaction between epileptogenesis and cognitive dysfunction. Dr. Jensen also was the recipient of the 2008 American Epilepsy Society Basic Science Research Award.

Dr. Jensen served on a number of leadership boards including the Council for the Society for Neuroscience, the Executive Board of the American Epilepsy Society, member of the nominating committee at the American Neurological Association, is on Council at NICHD, and will be President of the American Epilepsy in 2012. In addition, she serves on the scientific advisory a number of charitable foundations for medical research.

Dr. Jensen has authored over 100 manuscripts on subjects to her research, has been continuously funded by NIH since 1987, and has trained numerous clinical and basic research who now hold independent faculty positions nationally and internationally. Dr. Jensen also is the sponsor of an FDA-approved IND for an ongoing multi-center clinical trial of a novel therapy for neonatal seizures, generated from basic research in her laboratory. She is also an advocate for awareness of the adolescent brain development, its unique strengths and vulnerabilities, as well as their impact on medical, social, and educational issues unique to teenagers and young adults.

For more information on Dr. Jensen, her research and her laboratory please visit the following:

University of Pennsylvania

Harvard University and Children’s Hospital of Boston

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