by thehowardhouse | Sep 28, 2016 | Harper's Updates
Did Run4Hope 2016 raise enough to make an impact? Run4Hope had a 2016 goal of 300 runners and to raise $20,000 for epilepsy research and awareness. Our very optimistic plan in setting this goal is to send $10,000 to Harper’s cells at University of California...
by hope4harper | Sep 21, 2016 | Harper's Updates
It was a beautiful day for a Run Thank you for supporting seizure research and epilepsy awareness at 2016 Run4Hope. The Memorial 5K and 1-mile family Fun Run was last Saturday in Carrollton. There are many photos on the Run4Hope Facebook page, or click...
by thehowardhouse | Jun 30, 2016 | Harper's Updates
We saw no better way to move CDKL5 research forward Hope4Harper spent the last two weeks openly sharing our experiences with media at the World Cannabis Conference in New York City and with families at the CDKL5 Scientific and Family Conference . My hope was that...
by hope4harper | Mar 31, 2016 | Harper's Updates, Seizure Research Project
In my previous post I mentioned that the parts of Harper not donated to science were cremated. Body donation is delicate but it is not a scene out of Frankenstein. Science takes the pieces they need and can appropriately preserve for valuable research. The remains...
by hope4harper | Mar 23, 2016 | Harper's Updates, Upcoming Events
How would you market HOPE? Hope4Harper began exactly five years ago because of a specific diagnosis of Harper’s rare genetic disorder. Hope4Harper has evolved into an organization of spreading HOPE and help in funding research that is centered around providing a...