by hope4harper | Apr 17, 2016 | Harper's Updates, Seizure Research Project
Hope in Our Hands: Cell Research on Harper’s Birthday (Pt. 1) “The emotion that can break your heart is sometimes the very one that heals it…” -Nicholas Sparks Our 3-day, 2-night visit to Harper’s new “home” at a cell...
by hope4harper | Apr 12, 2016 | Harper's Updates, Seizure Research Project
In honor of Harper’s Birthday (4/12/16), we invite you to register for Hope4Harper’s memorial Run4Hope at the one-day (April 12th only) one-time price of $12! This registration special ends at midnight. No coupon code is needed. Harper’s 1st Birthday, 2011 Life...
by hope4harper | Mar 31, 2016 | Harper's Updates, Seizure Research Project
In my previous post I mentioned that the parts of Harper not donated to science were cremated. Body donation is delicate but it is not a scene out of Frankenstein. Science takes the pieces they need and can appropriately preserve for valuable research. The remains...
by hope4harper | Mar 27, 2016 | Harper's Updates, Seizure Research Project
It’s a strange feeling to have relief and pain at the same time I am so happy that Harper is no longer suffering! She lived 2097 days. That is 299 weeks trapped inside a broken body that hurt. Grief is not a process it’s a new way of life Do not be fooled by our...
by hope4harper | Mar 23, 2016 | Harper's Updates, Upcoming Events
How would you market HOPE? Hope4Harper began exactly five years ago because of a specific diagnosis of Harper’s rare genetic disorder. Hope4Harper has evolved into an organization of spreading HOPE and help in funding research that is centered around providing a...